Anyone here suffers from unexplained aural migraines, who would be

up for talking for a bit?

Doesn't *have* to be aural, but I am not asking about headaches, I mean actual migraines that last a fair length of time (hours/days) and have stages.

I have often migraines some will last long like 3-4 days, some just a day (not sure what aural is)

How often?

Aural is what you see on the image (aura), it's (usually I suppose) the stage before the pain kicks in, fucks with your vision for a while. Some people have migraines with it, some don't. The picture there shows a progressed blur-dot. You get a blur dot on your vision, and it starts expanding into the O shape and enlarging, can be over your entire vision, so you just see blurry and hazy for a while.

It is really random there are months without any or at worts mild but there were times when I would have pretty bad one each week

Usually my vision is just little blurred but not like in a cycle... I would say like the whole image

Some people see "lightning bolts" which I imagine must be especially fucking fun while driving or otherwise operating heavy machinery, that sounds like an aura. It's different for people. It can also change over time.

How do you spend your days, especially at periods when it's bad?

Ibuprofen

I have aggressive "aural migraines" yes

I mean what do you DO during the day, hour by hour, especially BEFORE you get the migraine?

Sometimes I wake up and I have it. Sometimes on my way from work in public transport

Where I see static and flashes in a shape very similar to in that image anywhere from 6 to 12 hours for a few days. I wear sunglasses even if the lights are all off because tiny lights like electronics etc make it worse.

You wear a backpack or something over shoulders, heavy?

Its not that heavy, like 5kg top. But I don't wear it often since I have my office and travel is just 30 minutes

What do you do before bed in that case, the night before you get the morning migraine?

IMO nothing unusual for me, so it is kinda random. In my case I think long times with a lot of work and stress make it more probably to happen. Bad sleep also

Стикер

What's 'nothing unusual' for you? Sitting at a desk using a computer, lying in bed with a laptop/phone? Doing some hobby?

Pain wise and visually, and overall mentally yes haha

Huh, do you think the pain is some sort of placebo from seeing what you think is an aura?

Yeah. Happened with all of those. What I am trying to say that I haven't figured out a pattern, it seems random to what I do, I could be learning, watching some anime or just being with family

yep, same here

Can you send a pic of your desk+chair+screen?

That wouldn't help you cuz I had it happen at parents place, in old house, new flat, at my office, in classroom

I promise you it might

Goes for @trevthedev @InvertedCookiee too if you guys/girls are capable of getting it from just sitting at your computer or sometime afterwards.

I don't have a desk or chair haha

This is me. Either right eye or left eye. Haven't had both eye

Well well well, how's your posture young man?

Sleep. My situation when it happen, it means I don't have enough sleep. If I didn't sleep, then the migraine will kicks in. When the migrain started, I need to sleep twice longer to remove the migrain. Eg. Lightning bolt = 1 hour sleep. Migrain after lightning bolt = 2 hour sleep

Стикер

Bad. And I'm not that young. 45 this year

Catch up with backlog of work.

So computer work?

Yes

You're spending X extra hours at the computer late at night, where you are possibly having even worse posture due to being tired. It may be that it's not the lack of sleep that actually triggers your migraine, it's what you're doing instead of sleeping. Could you possibly be misplacing your trigger, looking at the symptom(less sleep) instead of the root cause (extra desk work)?

Correct. Extra work leads to less sleep and cause the lightning bolt and migraine. If I sleep at least 6 hours per day, I will not have it.

Martin Rys
And what's the worst ° position you're in for more...

How's your usual worst neck posture when working this way?

15 degrees when looking at phone standing. When doing work, mostly sitting down properly looking at laptop on the table

Стикер

15 degree

how often do you have the migraines lately?

did not have it for the past 30 days at least. because I control my sleep time

Looking at my neck posture in mirrors, I make sure to be looking up, so -5 by default, sometimes I look lower. The ° bend that I am pretty sure triggers a migraine in me would apparently be pretty minor, even 15° should be enough to trigger it over longer time. If you can, try moving your setup up (dock, mat, angle display or just put a book under it) and see if you still suffer if you work into the night while keeping your neck in mind and having a heightened setup

will do. always good to have other people remind me about it. thanks.

Yes, I'm available

Read from here - https://t.me/thedevs_chat/643672 And let me know the answer to this - https://t.me/thedevs_chat/643675

Aha, so my root cause is due to several neck injuries (rugby and motorcycles). I've also had a change in my prescription glasses. The biggest change was when I started using a standing desk and a better office chair.

Still get any migraines?

Few and far between now. Maybe once a year vs once a month

How'd you figure out it was connected to the neck?

Sports physicist told me its probably my neck due to my work and past injuries

Ah, not-a-doctor told you, that checks out.

I get zero of them if I watch out for everything I mentioned, you could possibly also get rid of them completely if you're extra careful with neck position.

I did in the past not anymore though had it like 1-2 times per year haven't had this for many years now.

oh wow, mine never lasted longer than 1 hour

first time I got very scared because it starts in the center of the vision making it close to impossible to read anything. Text becomes so distorted it's impossible to decipher anything written. Then it slowly fades towards peripheral vision and eventually, ends up becoming tunnel-vision and then finally it's gone